Hear from Adrenoleukodystrophy (ALD) Families
Although everyone's experience with ALD is different, it can be helpful to hear from other families navigating diagnosis, symptoms, management and everyday life.
Hear from other families and their experience living with ALD.
JUMP TO: Corr Family Vutrano Family Torrey Family
Hear from other families and
their experience living with ALD.
JUMP TO:
Hear from other families and their experience living with ALD.
JUMP TO: Corr Family Vutrano Family Torrey Family
Hear from other families and
their experience living with ALD.
JUMP TO:
Meet the Vutrano Family
Something came back on his newborn screening for adrenoleukodystrophy. At the time of diagnosis, I didn't even hear what he said, I just heard a very long word. This is what we have, and this is what Dominic has.”
Marisa Vutrano
ALD Caregiver
Listen to the Vutrano Family as they open up about how their son Dominic was diagnosed with ALD through newborn screening. Learn how the family works with their care team to monitor for cerebral ALD and how they navigate life after diagnosis.
