ALD Doesn't

Mean Putting Life

On Hold
Real families affected by ALD have helped inspire the making of this site. Their photos will be featured throughout.
ALD Doesn't

Mean Putting Life

On Hold
Real families affected by ALD have helped inspire the making of this site. Their photos will be featured throughout.

Navigating Life with Adrenoleukodystrophy (ALD)

Use the links below to learn more about building an ALD care team and creating a plan for your family.
Take control of your experience with ALD by building out your care team.
Learn more about cerebral ALD and the importance of monitoring.
Hear from other ALD families as they share their stories and experience with ALD.

Take control of your
experience with ALD by
building out your care team.
Building Your
Care Team
 

Learn more about cerebral
ALD and the importance
of monitoring
Monitoring for
Cerebral ALD
 

Hear from other ALD
families as they share their
stories and experience
with ALD
ALD Stories 
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Our Promise to You

At bluebird bio, we’re committed to supporting the entire ALD community, including parents, caregivers, and individuals living with ALD. Navigating ALD was created with voices from leading advocacy organizations, who helped inspire the making of this website by sharing their personal experiences.

No matter where you are in your journey with ALD, you’ll find information here for you. This site was designed to provide you with support in addition to the care you receive from the health care professionals in your care team. With a better understanding of ALD, you can work with your care team to create a plan that specifically works for you and your family. You are not alone in navigating ALD—we’re all working to support you. This is our promise. 

Our Promise to You

At bluebird bio, we’re committed to supporting the entire ALD community, including parents, caregivers, and individuals living with ALD. Navigating ALD was created with voices from leading advocacy organizations, who helped inspire the making of this website by sharing their personal experiences.

No matter where you are in your journey with ALD, you’ll find information here for you. This site was designed to provide you with support in addition to the care you receive from the health care professionals in your care team. With a better understanding of ALD, you can work with your care team to create a plan that specifically works for you and your family. You are not alone in navigating ALD—we’re all working to support you. This is our promise. 

Our Promise to You

At bluebird bio, we’re committed to supporting the entire ALD community, including parents, caregivers, and individuals living with ALD. Navigating ALD was created with voices from leading advocacy organizations, who helped inspire the making of this website by sharing their personal experiences.

No matter where you are in your journey with ALD, you’ll find information here for you. This site was designed to provide you with support in addition to the care you receive from the health care professionals in your care team. With a better understanding of ALD, you can work with your care team to create a plan that specifically works for you and your family. You are not alone in navigating ALD—we’re all working to support you. This is our promise. 

Our Promise to You

At bluebird bio, we’re committed to supporting the entire ALD community, including parents, caregivers, and individuals living with ALD. Navigating ALD was created with voices from leading advocacy organizations, who helped inspire the making of this website by sharing their personal experiences.

No matter where you are in your journey with ALD, you’ll find information here for you. This site was designed to provide you with support in addition to the care you receive from the health care professionals in your care team. With a better understanding of ALD, you can work with your care team to create a plan that specifically works for you and your family. You are not alone in navigating ALD—we’re all working to support you. This is our promise.